Wednesday, August 05, 2009

the hospital

Long story short . . .

Cali's "hemangioma" was growing incessantly. It was so large, hard and tight that it was causing her extreme pain. When the doctor saw her photos (emailed) he wanted to see her the next morning (Sunday) in his office. Once there, he sent us straight to the children's hospital.

Over the next few days Cali received an IV, blood work, an MRI [scan of her face], and a biopsy [small sample of tissue surgically removed]. They also started her on some heavy duty meds.

We will learn the results from the biopsy tomorrow--so more info to come--but their latest diagnosis was that it is not an hemangioma but a rare lymphangioma. It is not a growth of tissue or blood but a mischanneling of her lympahtic vessels. The fluid instead collects in her face. During the biopsy the surgeon drained the fluid, thus releasing the pressure and Cali's pain. But, as it will soon fill again, a large area will need to be surgically removed and she may need radiation therapy.

Again, this prognosis is all assuming that it has to do with her lymphnodes. More to come.

It's definitely been scary and sad. But Cali's been a trooper, and we have received great care from the doctors and nurses. We are thankful the Cali will no longer need steroids or chemotherapy.

Thank you for your love and concern on our behalf. Below are Cali's pictures as the growth continued and at the hospital.

The night before she was admitted to the hospital. If you can believe it, the thing grew even bigger the next day.

Pre-surgery in her hospital gown

The fluid drained


Blogger Meggie said...

Miss Emily - You and your family are in our prayers. We love you guys and are here for you if you need ANYTHING.

9:49 PM  
Blogger Libby said...

holy cow emily! how scary! my prayers and thoughts are with you and your baby girl. i can't imagine.

4:37 AM  
Blogger Mrs. Dub said...

Oh, Em, we will be stepping up our prayers for you guys. What a scary experience for all of you. Please keep us posted and let us know if we can do anything (including hopping on a plane and watching Bria).


5:27 AM  
Blogger Jenn said...

Poor Cali! That looks SO painful. She looks so sweet and peaceful in that last picture. We are praying for her!

11:15 AM  
Blogger Melanie said...

Wow, I don't know what to say...I still can't get over how big it had gotten! I've been thinking a lot about your sweet little girl and your family this week as we've been sweating and working in our new home. I can't imagine how you and David have felt dealing with all of this. I'm sure it's been very scary and stressful. PLEASE let us know if we can do anything. I'm glad ya'll have some answers now. Keep us up dated... love ya! Mel

9:10 PM  

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