Thursday, August 13, 2009

round 1

After calling and driving and persisting we got into the pediatric radiology specialist (supposedly "the best in the country"). She took one look at Cali and said, "Yep, she needs sclerotherapy. We can do it tomorrow."

So at 6 this morning Cali and I headed to Dallas Children's where she had her first round of therapy. She had to go under general anesthesia, get an IV and breathing tube; then they drained her lymphangioma [again] and re-injected it with doxycyclin, an antibiotic that's supposed to scar her lymph channels and shrink the thing down.

Post-op Cali is very uncomfortable and sad ... But after a couple of weeks her face should shrink down. We hope that she bounces back quickly.

We will follow up with the specialist in 2 weeks, then most likely do the whole procedure over and over again until it's gone. Even after it shrinks Cali may need cosmetic facial surgery to repair stretched skin, but that wouldn't be for a few years. Luckily she's still "growing into her skin."

Here are some pics pre-procedure. We hope she feels cheery again soon.


Blogger Gillian Alcala said...

I am so glad you found someone with the right answers. We will keep her in our prayers. You too - I know this must be a difficult time for you as her mother. Hang in there. Call if you need anything.

12:13 PM  
Blogger The Morrisons... said...

Look at her...I love those teeth. We hope she feels better soon. I glad you finally got a hold of that Doc.

Take Care.

2:56 PM  
Blogger Meggie said...

Well at least she looked happy before the procedure! We sure love you guys and keep us posted.

Meg, Bry, and Ben.

4:56 PM  
Blogger Shelley said...

I am so thankful for you to find a Dr. that understood. I can't imagine your frustration. Cali looks so happy for all she has been through. She looks like your baby pictures! I loved pics of cute cuzins playing in Seattle! What a fun family! Love and prayers!

11:37 PM  
Blogger Hillary said...

I hope the treatments will help her little cheek to get better. We are all worried about her and you. I know it must be a stressful time right now. I wish I lived close by so I could help you more.

6:50 AM  
Blogger Cecilia Parma said...


6:51 PM  

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